Diana (kianamalele) wrote in cvs_support,
Diana
kianamalele
cvs_support

Wow! They finally have a name for this!!

I was diagnosed with "abdominal epilepsy" at the of 4 yrs by a wonderful neurologist. I really think he was a pioneer for this condition at the time. I had so many tests, upper GIs, etc. that I think my parents were going to lose their minds.

It started when I was very young (2-3yrs). I would wake up usually around 1:30am (but occasionally around 6 am) shaking and nauseous. My mother says that I was a corpse color gray. She would get me to the bathroom and I would proceed to vomit for about 15 minutes. I would then get real tired and go back to sleep. This would happen up to 3 or 4 times in one night and up to 2 times a week. When I would wake up, everything would be fine.

I missed lots of school. Dilantin and Misolin (sp?) helped a lot. My EEG was normal at 10 yrs old with no more symptoms. I never passed out or seizured.

Even now I have waves of this out of no where. what do you do as an adult? Stress almost always brings this on for me.

Sharon
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